When it comes to dementia or Alzheimer's, everyone has been touched by this disease in one form or another, whether it be a parent, grandparent, sibling, aunt, uncle, cousin or friend. This disease can come for anyone, at any time.
In 2007, my mother, Frances, was diagnosed with dementia at the tender age of 55. Dementia is a syndrome in which there is deterioration in memory, thinking, behaviour and the ability to perform everyday activities. Alzheimer’s is the actual disease.
I was 22 years-old and now had to make life altering decision for my mother. I was devastated, overwhelmed and did not know what life had in store for me. Now, after caring for her for nearly 10 years, I realize I am still just trying to navigate this extremely tricky road.
In terms of providing care for someone suffering from dementia, the best analogy I have been able to come up with is that it is like a dance. There are times when this disease and I are in perfect unison; however, at times, I am stepping on its toes, or it is leaving me winded. It is a delicate relationship that must be experienced to truly understand.
Share your steps with me for coping with this intricate dance with dementia.